They just kicked me out for shift change, so I figured I would update this. John is doing about the same as earlier this afternoon, which is actually a good thing. Not sure what the plan is for him for breathing for tonight, but we'll do whatever the respiratory experts think is best for his breathing. Might mean he has to do the BiPAP machine again, which is very loud and uncomfortable for John, but it does give his muscles a slight rest from breathing so hard. He is still awfully tired, but was able to eat some high protein pudding and drink some more water. They don't want to have to give him any fluids IV if they don't have to, they would rather he takes in nutrients by mouth. When I can get back in there he'll drink some high protein juice and maybe eat some applesauce. Every little step is a big deal at this time. We still haven't heard about the heart biopsy, but I think that if there was anything significant there we would have heard. They are continuing to wean him from some of the other medicines, so that is good too. Not sure if his heart is back in a good rhythm yet, but it is slower and not nearly as erratic as it was yesterday evening and parts of this morning. Doctors will probably still come around tonight so maybe we'll get more information.
We can't thank you enough for the support and prayers, they sure do make a difference.
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I'm so glad to see an update where things seem a little better in some areas. John definitely seems to do better, Missy, when you're in the room. I'll continue to pray for strength in his lungs and acceptance of the heart. Hugs, hugs, hugs! Jo Ellen
ReplyDeletePraying for you and really appreciate these updates! I have so many people you have never met really sending you prayers!
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